Jack is doing well for the most part in school. We had his cpse meeting for next year and it went pretty well. We are staying on top of all the safety concerns for Jack.
 Jack has a few appointments coming up soon. They are mainly all check ups. Jacks daily pain is still my main concern. I hate having my child in pain. Jack seems to deal well with all of it. 


We got most of Jack's lab results back and some tests are off but nothing too alarming. The doctors still search for a primary condition. Most of the doctors suspect his mitochondrial disease is secondary to another condition. The genetic doctor says she has seen things manifest once a child is much older. At this time it is just the confirmed mitochondrial disease. I honestly don't care what they call anything. I just want him to feel better. I want him to be like everyone else. He deals so well with all the restrictions and medications put on him. He is very happy. We have him in swimming trying to help with the unexplained weight gain. We monitor his calorie intake and his sugar levels are still in fluctuation. It is a daily battle and struggle.


Please keep Jack in your prayers. We believe in the power or prayer. Jack is a happy boy and a inspiration to me as his mother.